Az State Funding for Babies With Down Syndrome

Programs & Resources

[vc_row css=".vc_custom_1602239561033{margin-peak: 0px !important;margin-lesser: 0px !of import;background-image: url(https://sharingds.org/wp-content/uploads/2020/10/Background.png?id=2729) !important;}"][vc_column][vc_column_text]Angels Amongst Us:Hospital and Home Visits with New Families –Our goal is to reach every family in our area who has a child with Down's syndrome.

• We provide new parent tote bags to children in AZ who are built-in with Down syndrome.
• These numberless include several books on raising a child with Down syndrome, a Baby Signing Times DVD, a onesie, a t-shirt, a journal and a handmade blanket.  Our new parent kits are valued around $100-125.
• Babies with Down's syndrome tin can have medical challenges, like heart defects, abdominal, respiratory problems, developmental delays, hearing/vision impairments. All of this is overwhelming to a new parent – and that is the time where we step in to assistance.
• Our visits offering hope and empowerment and we allow the family unit know nosotros support them in the days and years alee.

We visit families in the hospital and provide whatsoever support they demand.

Stand Upwardly for Down Syndrome: Educational Advancement –Our goal is to give children with Downward syndrome the most inclusive didactics possible so that they may grow upward to fulfill their dreams and become self-advocates.

• Nosotros provide educational advancement for families through Susan Marks & Advocates.
• Families come up to us when they are no longer able to rectify a school situation in which their kid is not being fully included in the Least Restrictive Surroundings (LRE).

Almanac Social Events and Outreach:Our goal is to provide back up across the lifespan and have people view Down syndrome with a new, more forward thinking perspective without the former limitations and stigmas.

• Sharing Walks accept been happening for more than 20 years and each yr, the celebration focuses on community members who are making a difference, families who beloved their journeys (even during some tough times) and organizations committed to helping people with Down syndrome through their activities, funding and sponsorship.
• We as well host Christmas parties, and other special programs.
• We produce a monthly newsletter (in English language and Spanish) with information and resources helpful to our families.
• We also make regular visits to Arizona State University (ASU) and the Mayo Clinic to take our self advocates with Down syndrome speak about their lives with Down syndrome.  These discussions have been described as 'life changing'.

Our West Valley Holiday party in 2019

A volunteer started the 'Hip Hop Homies with Extra Chromies' trip the light fantastic toe group in 2018. Nosotros promise to offer more programs like this that are fun, social and provide regular physical action. In 2020, we coordinated with some other volunteer an online yoga form via Zoom during the pandemic. In 2021, a volunteer started a flag football game team.

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Afterward you become the parent of a child with Down syndrome, y'all may wonder, 'What do I do first?'

A skillful identify to start is with the AzEIP. You tin can telephone call them at 602-635-9799. Click on the box 'Refer a Child online' to begin the awarding process.

This program is under the Arizona Division of Developmental Disabilities Plan. AzIEP covers all children who take disabilities from birth to two years and 10.five months of historic period. By police force, this program is hither to aid you obtain therapies for your child, including Spoken communication, Occupational and Physical. These are home-based services.

Arizona's Medicaid agency that offers health intendance programs to serve Arizona residents.

DES works with families, community organizations, advocates, and country and federal partners to ensure that every child, adult, and family in Arizona will be safe and economically secure.

View a list of providers for services for people with development disabilities

The Social Security Administration provides disability benefits to Americans suffering from conditions that limit them from Substantial Gainful Activity.

On this site, you tin can find information on how to apply for SSI and proceeds other insight into services for people with disabilities.

Susan Marks & Advocates is an Arizona-based law firm and advocacy group devoted to addressing bug arising from having a disability.

Phelps LeClair Law is a local law house that has been providing estate planning services to its clients for over 40 years in Arizona.

The National Down Syndrome Congress (NDSC) is a not-for-turn a profit organization dedicated to an improved world for individuals with Down syndrome.

Founded in 1973, NDSC is the leading national resource of support and information for anyone touched by or seeking to acquire virtually Downward syndrome, from the moment of prenatal diagnosis through adulthood.

The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Enquiry, Medical Intendance, Educational activity, and Advocacy.

Formally established in 2009, Global'due south primary focus is to support the Linda Crnic Institute for Down syndrome, the start academic home in the The states committed solely to research and medical care for people with Down's syndrome.

The Clan for the Severely Handicapped is an international leader in disability advocacy.

Founded in 1975, TASH advocates for human being rights and inclusion for people with significant disabilities and support needs – those nearly vulnerable to segregation, abuse, neglect, and institutionalization.

TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families, and self-advocates.

If you or someone y'all know needs assistance with nutrient insecurity, there are community nutrient banks in the area that will assistance: St. Mary's Food Bank, St. Vincent De Paul, United Food Depository financial institution, Arizona Midwest Food Banking concern.

If any of our families demand extra support, you may want to look into the Maricopa County Public Health website and Facebook page.

The organization created a resource to connect residents with free or low-cost services, including mental health care, rent assist, childcare, and more than. Visit FindHelpPhx.org to learn more than.

Reece's Rainbow advocates and finds families for orphans internationally with Down syndrome and other special needs by raising funds for adoption grants and promoting awareness through an online customs, media communications, and other events.

National Down Syndrome Adoption Network provides information to birth and adoptive families who wish to make a domestic adoption plan for a child with Down syndrome.

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Source: https://sharingds.org/programs/

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